‘Friends of Luke and Zach’ are going for 10 winter swims in the sea over the next month to raise money for charity.
Friends of Luke & Zach are a local organisation founded in the parish of Mevagh, Co Donegal to support two young twin boys with Angelman Syndrome.
The group are going to complete ten swims/dips each in the wintery Atlantic sea between 20th December 2021 and 20th January 2022 in aid of the ‘Luke and Zach Foundation’.
So far they have raised over €1,200 of their €1,500 goal.
Angelman Syndrome is a rare genetic disorder resulting in a sever learning disability. One in 20,000 people have Angelman Syndrome, which is 250-350 people in Ireland alone.
People with Angelman Syndrome may speak only a few words, many do not walk, most suffer debilitating seizures and all require 24/7 care throughout their lives. Individuals born with this condition are known for their great personalities and warm smile.
Scientists recently made breakthrough discovery that a common antibiotic, normally prescribed for teenage acne, can restore the intellectual and motor functioning in a mouse with Angelman Syndrome. Human trials have began since 2012.
The organisation has been set up to support the boys and their family in a number of ways:
Possibility of future clinical trials
Home modifications
Raise awareness of Angelman Syndrome and most importantly to make that warm smile on their faces even bigger.
Find out more about Luke and Zach at https://www.facebook.com/FriendsOfLukeZach/
